Qualıty of Lıfe in Parents of Chıldren Wıth Autısm

Abstract

Within the scope of the study aiming to investigate the current status of parents with children with autism in terms of quality of life, 52 parents residing in Ankara were included in the study. The data obtained on the basis of volunteerism and criterion sampling method, as well as the personal data form, were developed by Eapen, Crncec, Walter and Tay (2014) and adapted to Turkish by Gürbüz Özgür, Aksu and Eser (2017). The data were tested with normality distribution as well as as descriptive statistics, and non-parametric tests were applied since it was determined not to show normal distribution. Mann-Whitney U tests were used for binary comparisons, and Kruskall Wallis tests were used to compare groups of three and above. The internal reliability coefficient was determined as .91 for the parental quality of life scale in autism. Research findings show that parents with children with autism have below-average quality of life, this value is the age, gender, educational status, employment status, mother or father status of the child with ASD, having a girl or boy diagnosed with ASD, and ASD. reveals that the child does not differentiate with variables such as as age. As a result of the research, it can be said that the quality of life of parents with children with autism is low and certain variables do not change this level in the life-long process such as autism. It is recommended to increase the quality of life with the systemic applications to be performed on parents with children with autism and children with autism.