Predictors of Quality of Life in People with Hemophilia Affiliated Hospital Entity, a Review of Literature

Abstract

To describe the evidence on predictors of quality of life (QoL) in hemophiliacs in a hospital.Narrative and documentary literature review. Five research studies were obtained from the Scopus database. The variable Quality of life in people with hemophilia was evaluated during the period 2018-2024.Predictors of poor QoL are the absence of early prophylaxis, the lack of more effective and better treatments, the presence of low self-esteem, anxiety and depression, poor coping resources, and the appearance of inhibitors.Hemophilia, as an orphan, chronic and complex disease, requires the observation of all aspects that involve the health and well-being of people with hemophilia (PWH), and that these be estimated by multidisciplinary teams and through instruments that evaluate their QoL.